Lymphomania

Excessive growths in and around the lymph system

Life is busy again January 13, 2008

Filed under: Diagnosis — susanjeide @ 11:23 am

I have to laugh because I’ve been so busy I haven’t had a chance to check my e-mail’s.  This is funny to me b/c the last year all I would do was sit here and press refresh checking for new posts or e-mail’s from people.  The boys are non stop excitement.  Luke alone can keep 3 adults very busy.  We have been enjoying playgroups and redecorating the house.  We went to Disneyland.  It has been such a great week.  I feel my energy is getting better everyday.  Each day is just filled with so many blessings.  I’m so blessed to have such a great family.  Life just seems so sweet and full of beauty I don’t think I noticed before.  It’s wonderful to just sit and look at the sky and take a walk.  It feels wonderful to just breath in the air.  The moments in life pass by so fast.  I’m enjoying each and everyday.

I go into the doctors tomorrow.  We won’t do a PET scan until March b/c if we did it now it would give us a false positive reading where they did the radiation.  So until March we are just living life like I’m cancer free.  We will have the official results of how the radiation worked in March.  As far as side effects I’m still having the bleeding issue.  Still hasn’t stopped even with and IUD with hormones.  I have no idea!!!!  We are just waiting for a few months to see if it will get better.  It is very annoying.  I have weird skin things happening like pealing, moles, old scars turning weird colors.  Things like that.  But non feel life threatening so I’m not to worried.  I’ll let you know how the doctors apt goes tomorrow.

ENJOY your day!!

 

My New Hair January 7, 2008

Filed under: Diagnosis — susanjeide @ 10:19 pm

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Tyler informs me I look like a boy all too often.  My hair is at that very awkward in between length.  I can’t really do much with it yet.  I have found some cute hair bands that help me look more like a girl.   Tyler is just like his Daddy sometimes they are just too honest. :)    Gotta love them!

I’m still having some weird side effects.  I go into the doctor on Friday.  I’m hoping after this appointment I will get a 3 month pass.  Can you imagine going 3 whole months with out going into a doctors office.  I think that would be heavenly.  The smell of the oncology office still make me nauseous.  As soon as the doors open I get sick to my stomach.  I wonder if I will ever forget that chemo smell?

I’m taking the kids to Disneyland tomorrow should be so much fun.  I told Adam we were going and he said, “Mommy are you going?”  I said, “Yes.”  He started jumping up an down with glee.  He was so excited Mommy was going.  I have seen such an amazing change in my boys.  They are smiling ear to ear.  You can see all the weight lifted from their shoulders.  This was an incredibly hard trial in there lives to watch their Mommy fight for her life.  They are incredibly strong and I’m so proud of how they weathered through this storm.  I think this experience will forever be etched in their hearts and they will be stronger for it.  I think it has made the bonds in our family so much stronger.  It is amazing what blessings that can come out of such hardship in our lives.

 

Mommy Tales January 6, 2008

Filed under: Diagnosis — susanjeide @ 10:29 pm

Luke has decided my walls are a nice canvas.  He will run into the kitchen open up the childproof cabinets steal a pencil run to the wall color them then run to the step and put himself in time out.  He does this in less then a minute.  It is rather amazing to see it.  I’m sure they would have to put it in slow motion for a replay.  He keeps me on my toes!  Now this is one small minute of Luke’s day the other minutes are filled with running from room to room looking for something anything that could be remotely dangerous and getting in to it.  He loves to find toothpaste, lotions, empty games all over the floor.  I have picked up puzzles a dozen times today.  You may think, “Why don’t you just lock things up?”  We did! We have locks on all the cabinets and the little Turkey has learned to open them up.  Took him 3 days.  I guess he is here to distract me.  Gotta love him!

 

The flu is here January 5, 2008

Filed under: Diagnosis — susanjeide @ 9:44 pm

It is sneaking up on us. Just when I think we are getting better and another bug hits our house. We seem to have caught every cold sinus infection and flu bug around. So frustrating!!! Well I’m hoping it is a short 24 hour one and we will all be better soon. Hope everyone else is staying healthy! I’m off to sleep and hope we will all wake up refreshed and healthy. :)

 

I’m Back! January 4, 2008

Filed under: Diagnosis — susanjeide @ 10:47 am

I did my first photo shoot yesterday!!! I’m so excited to be able to go out and take pictures again! It has been a year since I’ve been able to do my photography. It was so amazing to be outside and doing what I love. I felt this huge weight lifted off my shoulders. It was a pregnancy photo shoot. It was so much fun! Here are the pictures:

http://www.times2treasure.com/Maureen

Let me know what you think!

We are in the process of looking for someone to help me inthe afternoon. I get really tired around 2-3 and can fall asleep standing up it seems. I feel really blessed that this is the only real side effect I’m feeling. I can take tired any day over what the last year felt like. So much of my days are normal and healthy. I feel so blessed to be recovering so fast. We didn’t expect to have me doing so much already. I took some fun pictures of Luke and Adam. Luke is the hardest child to photograph. You can’t get him to hold still for more then and second and he refuses to look at my camera. So I had to pretend to fall alot to get a smile out him. He is my very challenging little Monkey! I hope you are enjoying your New Year! This year is just filled with Miracles remember to take the time to see them.

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The Next Chapter January 2, 2008

Filed under: Diagnosis — susanjeide @ 9:33 pm

So many changes are happening so fast around here.  My head is spinning!  Mom and Dad moved out and are starting the next chapter of their lives.  They have never lived with out kids so it should be fun for them.  As they embark on their next chapter the kids also are starting over.  Mom and Dad have lived with us for 3 years.  The boys don’t know life with out their Grammy and Papa.  Waking up and running down stairs to jump on them in the morning and Papa’s famous character pancakes are going to be greatly missed!  I can’t express enough the gratitude I feel for all they did for me and my family through this trial.  It was an amazing adventure and I was very blessed to have them help me through it.  I”m lucky to have parents and in-laws who are always there to lean on for support.  My boys are very lucky to have such awesome grandparents!   I’m very sad to see them leave but I know it is time.  I’m excited for them!  Life now has to limits for them and they will be able to discover what it is they want now.  I guess this means I’m better!  I feel like the band aid was ripped off and I’m still in shock.  Russ and I are going to experience living in our home alone for the first time.  Should be fun!  The New Year is going to be full of new experiences and challenges.  But I’m just so relived that I have my health and body back.

 

Life after cancer January 1, 2008

Filed under: Diagnosis — susanjeide @ 1:24 pm

I feel so overwhelmed in so many ways. I’m so thrilled to be able to do things again. I love that I can get up and rock Luke in the middle of the night. I love that I can get up in the mornings and help get the kids ready for the day. The things in life that seemed like burdens and hard work seem so refreshing and liberating to me now. I’m just giddy to be healthy enough to participate in my children’s life again. Tyler is a new child. He has lost his attitude and seems so happy. It has been so long since I’ve seen my old Tyler and I just cherish all my moments with him. The Christmas break has been wonderful. I have been able to spend so much time with my boys. They are such a gift! Seeing how much my boys have changed since I’ve felt better shows me how important motherhood is. Being a Mommy is such a gift and such a great responsibility. I’m so unbelievable thankful I get to be MOMMY again. This is going to be the greatest year of our lives!! HAPPY NEW YEAR!!!!

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I’m going to start taking pictures again!! This will make my life complete! Russ suprised me and got me a new camera for Christmas! I’m still in shock that I got it and I can’t wait to start using it.